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DNA companies should receive severe penalties for losing our data

Personal data has become a precious commodity, akin to gold. The recent security breach at 23andMe serves as a stark reminder of a disconcerting reality — our most private and intimate information may not be as safeguarded as we assume. This incident underscores the alarming negligence of companies that, while capitalizing on our genetic information, are falling short in its protection.

The breach at 23andMe allowed hackers to access the personal details of a staggering 6.9 million users, including family trees, birth years, and geographic locations. This prompts crucial questions: Are companies truly taking adequate measures to secure our data? Can we place our trust in them with our most personal information?

While companies pledge to safeguard our data, there are noteworthy concerns. The potential for government overreach looms large, as entities like the FBI may be eager to exploit such extensive DNA datasets for various investigations. The argument that individuals with nothing to hide need not worry only holds partial validity; the core issue lies in the matter of consent. For instance, my father underwent a DNA test without my consent, leading to unexpected family revelations and potential complications.

The scenario of an intrusive future, reminiscent of a Black Mirror episode, is conceivable. A single family member’s curiosity about their ancestry could lead to law enforcement knocking on doors of genetically related individuals for alleged crimes. The audacity of companies like 23andMe is remarkable; they position themselves as custodians of our genetic heritage but resort to blaming users’ outdated passwords when data breaches occur.

This rationale is akin to a bank deflecting responsibility for a theft by blaming the account holder’s front door lock. Such excuses are unacceptable and represent a blatant evasion of accountability. Companies entrusted with such sensitive data should adhere to the highest standards, recognizing the gravity of handling not just financial details but our very genetic code — the blueprint of our existence.

The fact that the stolen data was marketed as a list of individuals from historically discriminated ancestries adds a disturbing dimension to the breach. It underscores the potential for misuse, including targeted attacks and discrimination.

The DNA testing industry must elevate its security standards, not merely meeting but exceeding expectations. These companies should lead the charge in cybersecurity, setting an exemplary standard for all industries. This goes beyond implementing stronger passwords or two-factor authentication; it necessitates a fundamental shift in how these companies perceive the data they manage. They must acknowledge the profound responsibility they bear, not only to their customers but to society as a whole.

However, optimism is scarce. The lenient response to previous breaches, such as the Equifax incident, raises doubts about the industry’s commitment to change. It’s time for 23andMe and the entire DNA testing sector to recognize that they are not merely handling data; they are managing people’s lives, histories, and futures. They must begin treating our data with the reverence and diligence it merits.

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